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CACNA1AEUROPEAN ASSOCIATION

What we do

We are a young association with clear goals. This is what we work for, and how you can be part of it.

  1. Promote research

    We want to fund and promote research on CACNA1A, and encourage families to join registries and natural history studies, the basis on which future treatments are built.

  2. Accompany families

    From the day of diagnosis: listening, sharing what we have learned and helping families find professionals with experience.

  3. Build a European network

    Families in Catalonia, Spain and the rest of Europe, connected to share experiences, meet up and speak with one voice.

  4. Share reliable information

    Clear information in Catalan, Spanish and English, so that no family depends on understanding medical articles in another language.

  5. Raise awareness

    Make CACNA1A and rare diseases visible, especially around CACNA1A Awareness Day on 19 March.

  6. Work with professionals

    Collaborate with hospitals, research centres, universities and public bodies that share our goals.

Want to help?

Members, volunteers and professionals make all of this possible.

Get involved